The 2nd
Annual Michael Clapcich Fund Benefit Concert
featuring
The Prescriptions
with special guests
Buddahead and John Eddie
Saturday, November 22nd 2008
The Bitter End
New York City's most famous rock club
located at 147 Bleecker Street
(212)673-7030
http://www.bitterend.com
$10 donation
The Healing Starts at 7:00p.m.
Yo Faithful,
Please join us for this very special event.... the
Second Annual Michael’s
Fund Benefit Concert, which will take place at the world famous
Bitter End
rock club on
Saturday,
November 22nd from 7-10PM. Rich Scannella (JE's
drummer) will not only be performing with John Eddie, but he will also be on
stage with his band
Buddahead. Organizing the event is a great
band called
The Prescriptions.
They are a band comprised of health care professionals dedicated to raising
funds for retinal research. Their goal is to use their musical talents to
make sight saving medical research a reality.
The Michael Clapcich Fund for Retinal Research
http://www.michaelsfund.org)
was
created by Bob and Josephine Clapcich for their son, Michael, who was
diagnosed at birth with Cobalamin Cellular Metabolism Defect Type-C.
Children with cblC suffer from a number of serious health problems including
a characteristic pigmentary retinopathy with perimacular degeneration that
can lead to blindness. The Michael Clapcich Fund for Retinal Research is
dedicated to promoting research, developing treatments, and providing
support for people diagnosed with rare inherited disorders of cobalamin
(vitamin B12) transport and metabolism.
The NIH's Office of Rare Diseases states that, "an orphan or rare disease is
generally considered to have a prevalence of fewer than 200,000 affected
individuals in the United States". Research on these “orphan” diseases is
often very limited secondary to lack of proper funding. There are fewer
than 1000 cases of cblC worldwide— one can easily understand the obstacles
that stand in the way of progress.
This is where you can help. All gifts donated to Michael’s Fund, a
registered 501(c)(3) non-profit organization, are used exclusively for
research involving cobalamin metabolism and its associated defects. At this
time, we are very fortunate to be working with Dr. Charles Venditti of the
NIH in launching a number of exciting cblC directed projects.
We hope you will join us on November 22nd at the Bitter End for a
high-voltage evening of “Rocking for Retinas”! If you are unable to make
it, and would like to make a donation, you can do so on line via the
Michael’s Fund website.